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protocol and recruited few patients, citing previous poor experiences with telehealth,
concern that a remote monitoring service would threaten their jobs, or a belief that
patients ‘deserved better’. The implied role change for the specialist heart failure nurse
was potentially far-reaching. Instead of spending her time seeing patients in clinic or
visiting them at home, nurses would now be spending a proportion of their time sitting
in a data processing centre looking at on-screen data and trends. Furthermore, one driver
for the introduction of the telehealth programme was a rapidly rising incidence of heart
failure (and, because of improved care, patients were surviving many years after
diagnosis). One cardiologist spoke of a health economic model in which the case load
for each nurse would increase from 35 to 200 patients. Whilst some nurses embraced this
vision enthusiastically, others strongly resisted it on the grounds that a dramatic
reduction in direct patient-facing activity meant that they were no longer being heart
failure nurses.
Patients expressed a wide range of views about remote biomarker monitoring in the
SUPPORT-HF study; some took an active interest in their readings, engaged
enthusiastically with the feedback they received, and found this monitoring reassuring.
Others found the experience confusing and burdensome; they did not know (and did not
wish to learn) what the numbers meant. In some cases, a research nurse who knew the
patients well provided (unofficial) telephone support to maintain engagement.
The organisations: Participating sites in the SUPPORT-HF study were generally
semi-autonomous cardiology units based in large district general or teaching hospitals.
With few exceptions, leadership and managerial relations were good and (because of
research support funding for the trial) there was sufficient financial slack to support
introduction of the technology. As a research initiative, the SUPPORT-HF technology
was not integrated into mainstream services, but we tentatively predict that because of
the major knock-on implications for work routines (especially in relation to community
heart failure nurses), this technology will be experienced as ‘disruptive’ and hence prove
difficult to mainstream after the ‘proof of concept’ phase ends. One further external
factor is the complexity of heart failure services, which typically span general practice,
community clinics and hospital services – each of which has a different funding stream
and different patient caseload. A telehealth-supported service in one of these sectors may
need to interface with other sectors in the same locality that do not support (and perhaps
do not trust) telehealth.
The wider system: The SUPPORT-HF study unfolded at a time when there was a
strong policy push for telehealth initiatives in general and for initiatives to reduce
outpatient attendance in particular. But whilst the policy environment was positive, our
data showed that in some sites up to half the eligible patients could not be randomised
because of the variability of broadband speed outside the main cities. The extent of inter-
organisational networking among participating departments in the SUPPORT-HF study
was limited as this was not an explicit component of the trial intervention; we suggest
that if this technology is introduced as a business-as-usual intervention post-trial,
networking and knowledge-sharing among organisations should be supported (either via
a virtual link or occasional face to face meetings).
Evolution and adaptation over time: The tablet technology used for SUPPORT-
HF included some limited scope for adaptation and customisation, but our qualitative
data suggested that both staff and patients wished to adapt it further (either to
accommodate individual needs and preferences or to adjust to external factors such as a
changing technical infrastructure in the participating service). We are somewhat
T.GreenhalghandS.Abimbola /TheNASSSFramework–ASynthesisofMultipleTheories 201
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book Applied Interdisciplinary Theory in Health Informatics - Knowledge Base for Practitioners"
Applied Interdisciplinary Theory in Health Informatics
Knowledge Base for Practitioners
- Title
- Applied Interdisciplinary Theory in Health Informatics
- Subtitle
- Knowledge Base for Practitioners
- Authors
- Philip Scott
- Nicolette de Keizer
- Andrew Georgiou
- Publisher
- IOS Press BV
- Location
- Amsterdam
- Date
- 2019
- Language
- English
- License
- CC BY-NC 4.0
- ISBN
- 978-1-61499-991-1
- Size
- 16.0 x 24.0 cm
- Pages
- 242
- Category
- Informatik